The purpose of the Association for Glycogen Storage Disease shall be to protect and promote the best interests of all persons and families affected by Glycogen Storage Disease [GSD]; to promote the establishment, improvement, and management of facilities for the treatment, study, education, shelter, recreation, recuperation and other general benefit to GSD-affected persons; to act as a vehicle of communication on GSD-related matters to patients, families, professionals, and the public; and to act as a focus for scientific, educational, and charitable activities related to the disease.
The Association for Glycogen Storage Disease [AGSD] is a parent and patient oriented support group that is advised by a group of experienced medical professionals.
The AGSD was established in 1979 in order to create an organization which would be a focus for parents of and individuals with all types of GSD to communicate by:
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Connection: You are connected to a larger group banded together to produce positive results for Glycogen Storage Disease nationwide.
Conferences: All members have the option to attend the AGSD Annual Conference. Conference registration cost and related expenses, however, are not included in membership dues. Each year the conference draws upwards of 200 families.
Financial Assistance: The AGSD offers educational scholarships for college and vocational schools, conference travel assistance, and family medical assistance funds to qualifying members.
Grants: The AGSD offers grants to researchers.
Friendships Members can participate in AGSD events and meet lifelong friends who share, support and inform.
Public Policy / Advocacy: We strive to raise public awareness and provide education on key issues associated with Glycogen Storage Disease.
Publications: Through our quarterly digital newsletter, The Ray, our members get access to articles that are of interest to the AGSD community.
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