Annual AGSD Conference
The Association for Glycogen Storage Disease (AGSD) hosts an annual conference that brings together individuals affected by GSD, their families, and the medical professionals dedicated to their care and research. This event serves as a meaningful space for connection, education, and support.
What is Glycogen Storage Disease (GSD)?
Glycogen is the storage form of glucose (sugar) in the body. It is a complex material made of individual glucose molecules linked together in long chains with many branches off the chains (just like a tree). Glycogen is mainly stored in the liver and muscle cells, but the kidneys and intestines also store some limited amounts of glycogen.
The underlying problem in all of the Glycogen Storage Diseases is the use and storage of glycogen. Sometimes GSDs are also referred to as glycogenoses because they are caused by difficulty in glycogen metabolism.
About AGSD
The Association for Glycogen Storage Disease – AGSD – was established in 1979 in order to create an organization which would be a focus for parents of and individuals with glycogen storage disease (GSD) to communicate, share their successes and concerns, share useful findings, provide support, create an awareness of this condition for the public, and to stimulate research in the various forms of glycogen storage diseases.
This website provides basic information about the glycogen storage diseases. The information is intended to be of use to people affected by one of the glycogen storage diseases, their families, and other interested parties.
Some forms of GSD cause little in the way of illness, while others are life threatening. Included in this site is a description of the general symptoms, associated problems, current treatment, and long-term outcome for the most commonly diagnosed glycogen storage diseases. It does not do justice to the difficulty patients and their families’ experience, and their deep desire for improved forms of treatment or ultimately total correction.
About AGSD
The Association for Glycogen Storage Disease – AGSD – was established in 1979 in order to create an organization which would be a focus for parents of and individuals with glycogen storage disease (GSD) to communicate, share their successes and concerns, share useful findings, provide support, create an awareness of this condition for the public, and to stimulate research in the various forms of glycogen storage diseases.
This website provides basic information about the glycogen storage diseases. The information is intended to be of use to people affected by one of the glycogen storage diseases, their families, and other interested parties.
Some forms of GSD cause little in the way of illness, while others are life threatening. Included in this site is a description of the general symptoms, associated problems, current treatment, and long-term outcome for the most commonly diagnosed glycogen storage diseases. It does not do justice to the difficulty patients and their families’ experience, and their deep desire for improved forms of treatment or ultimately total correction.
