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AGSD Membership Membership in the AGSD is open to all persons 18 years of age or older that are impacted by the disease as well as health professionals and/or scientist who are actively engaged in the treatment/research of Glycogen Storage Disease. Active members enjoy the rights, privileges, and responsibilities of the Association as well as receive electronic copies of The Ray, our periodic newsletter. Membership forms must be received by 11:59 PM HST (Hawaii-Aleutian Standard Time) on February 29 to enjoy the right to vote or hold office for the membership year. All annual AGSD memberships expire on December 31 of the current year. Members can renew from November 1 - February 29 to avoid disruption to active membership status. Prospective members should either (1) use the online form to register online or (2) download, print, and mail a completed paper copy using this link membership registration form. (Located above in "Files and Resources'). In lieu of dues we are recommending a donation. Please click here or the donation tab to the left to support AGSD with a TAX DEDUCTIBLE donation. To begin your AGSD Membership registration, please enter your email address below and click on "NEXT." If you are an existing member looking to RENEW MEMBERSHIP, please click on " Edit Member Profile" below. There will be an option to renew your membership on the following page. |
About the associationThe Association for Glycogen Storage Disease - AGSD - was established in 1979 in order to create an organization which would be a focus for parents of and individuals with glycogen storage disease (GSD) to communicate, share their successes and concerns, share useful findings, provide support, create an awareness of this condition for the public, and to stimulate research in the various forms of glycogen storage diseases. This website provides basic information about the glycogen storage diseases. The information is intended to be of use to people affected by one of the glycogen storage diseases, their families, and other interested parties. Some forms of GSD cause little in the way of illness, while others are life threatening. Included in this site is a description of the general symptoms, associated problems, current treatment, and long-term outcome for the most commonly diagnosed glycogen storage diseases. It does not do justice to the difficulty patients and their families' experience, and their deep desire for improved forms of treatment or ultimately total correction. | ContactAssociation for Glycogen Storage Disease 1542 Flammang Dr. PMB 1004 Waterloo Iowa 50702
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