VOLUNTEER
Do your have a talent or passion that you want to share with the AGSD? The board of directors are always looking for help with various tasks and committees. Please email info@agsdus.org.
Committees
The AGSD needs the help of its members to most effectively help GSD families. Below is a list of committees (and fellow volunteers) who assist the board.
Interested members should contact the AGSD at info@agsdus.org and include the name of the committee in the subject line.
Newsletter Committee
Helps prepare an official electronic newsletter twice per year
Editor-in-chief: Barbara Owens
Current Members: Kim Burney, Brian Pawlik, and Rebecca Lichucki
Seeking members for
- Contributing GSD articles and News
- Proofreading documents
Fundraising Committee
Works with the AGSD Board to request funding from traditional and new potential sponsors that helps us with operations, family assistance, and putting on the best conference possible.
Committee Chair:
Current Members:
Seeking members to assist with:
- Standardizing language and request templates
- Soliciting potential corporate sponsors
- Seeking out new corporate sponsors
Historical Preservation Committee
Works with the AGSD to document historic events, pictures, conference programs, and other memorabilia to preserve the people, places, and events that helped make the AGSD what it is today.
Seeking members who have knowledge of the organization dating back to its origins in 1979.
About the associationThe Association for Glycogen Storage Disease - AGSD - was established in 1979 in order to create an organization which would be a focus for parents of and individuals with glycogen storage disease (GSD) to communicate, share their successes and concerns, share useful findings, provide support, create an awareness of this condition for the public, and to stimulate research in the various forms of glycogen storage diseases. This website provides basic information about the glycogen storage diseases. The information is intended to be of use to people affected by one of the glycogen storage diseases, their families, and other interested parties. Some forms of GSD cause little in the way of illness, while others are life threatening. Included in this site is a description of the general symptoms, associated problems, current treatment, and long-term outcome for the most commonly diagnosed glycogen storage diseases. It does not do justice to the difficulty patients and their families' experience, and their deep desire for improved forms of treatment or ultimately total correction. | ContactAssociation for Glycogen Storage Disease 1542 Flammang Dr. PMB 1004 Waterloo Iowa 50702
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