These are some Internet links with a good deal of information about GSD:
Association for Glycogen Storage Disease -UK (United Kingdom)
“Glycogenoses and Glycogen Storage Diseases” from NeuroHelp [University of Oklahoma College of Medicine]
“Liver Disease Information” from the American Liver Foundation
“Glycogen and Glucose Metabolic Disorders” from the Neuromuscular Disease Center at Washington University, St. Louis, MO
“Metabolic Diseases of Muscle” from the Muscular Dystrophy Association [MDA]
PubMed search for biomedical articles related to GSD
Educational Resources for Genetics from the Genetics Education Center at Kansas University
Glucogenosis LatinoAmerica GSD group in Latin America
Asociacion Espanola de Enfermos de Glucogenosis GSD group in Spain
Association Francophone des Glycogenoses GSD group in France
SHG Glykogenose Deutschland e.V. GSD group in Germany
Scandinavian Association for GSD
Associazione Italiana Glicogenosi GSD group in Italy
About the association
The Association for Glycogen Storage Disease - AGSD - was established in 1979 in order to create an organization which would be a focus for parents of and individuals with glycogen storage disease (GSD) to communicate, share their successes and concerns, share useful findings, provide support, create an awareness of this condition for the public, and to stimulate research in the various forms of glycogen storage diseases.
This website provides basic information about the glycogen storage diseases. The information is intended to be of use to people affected by one of the glycogen storage diseases, their families, and other interested parties.
Some forms of GSD cause little in the way of illness, while others are life threatening. Included in this site is a description of the general symptoms, associated problems, current treatment, and long-term outcome for the most commonly diagnosed glycogen storage diseases. It does not do justice to the difficulty patients and their families' experience, and their deep desire for improved forms of treatment or ultimately total correction.
Association for Glycogen Storage Disease
1542 Flammang Dr. PMB 1004
Waterloo Iowa 50702