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Contact

Address:
1542 Flaming Dr. PMB 1004

Waterloo Iowa 50702

Send us an e-mail:
info@agsdus.org

2023 AGSD Officers:

President, Kim Burney

president@agsdus.org

term ends 12/31/24

Kim Burney is from Ann Arbor, MI and has life experience with GSD Type IX.

Vice-President, Rebecca Lichucki

term ends 12/31/24

Rebecca Lichucki is from Illinois and has life experience with GSD Type Ib

Treasurer, Heather Edwards

treasurer@agsdus.org

term ends 12/31/24

Heather Edwards is from Denver Colorado and has life experience with GSD Type Ib

Secretary, Irene Helley

term ends 12/31/24

Irene Helley is from California and has life experience with an untyped GSD.



About the association

The Association for Glycogen Storage Disease - AGSD - was established in 1979 in order to create an organization which would be a focus for parents of and individuals with glycogen storage disease (GSD) to communicate, share their successes and concerns, share useful findings, provide support, create an awareness of this condition for the public, and to stimulate research in the various forms of glycogen storage diseases. 

This website provides basic information about the glycogen storage diseases. The information is intended to be of use to people affected by one of the glycogen storage diseases, their families, and other interested parties.

Some forms of GSD cause little in the way of illness, while others are life threatening. Included in this site is a description of the general symptoms, associated problems, current treatment, and long-term outcome for the most commonly diagnosed glycogen storage diseases. It does not do justice to the difficulty patients and their families' experience, and their deep desire for improved forms of treatment or ultimately total correction. 

Contact

Association for Glycogen Storage Disease

1542 Flammang Dr. PMB 1004
Waterloo Iowa 50702


info@agsdus.org

                    



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