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Mission

The purpose of the Association for Glycogen Storage Disease shall be to protect and promote the best interests of all persons and families affected by Glycogen Storage Disease [GSD]; to promote the establishment, improvement, and management of facilities for the treatment, study, education, shelter, recreation, recuperation and other general benefit to GSD-affected persons; to act as a vehicle of communication on GSD-related matters to patients, families, professionals, and the public; and to act as a focus for scientific, educational, and charitable activities related to the disease.

Purpose

The Association for Glycogen Storage Disease [AGSD] is a parent and patient oriented support group that is advised by a group of experienced medical professionals.

The AGSD was established in 1979 in order to create an organization which would be a focus for parents of and individuals with all types of GSD to communicate by:

  • sharing their successes and concerns
  • sharing useful findings
  • providing support
  • creating an awareness of this condition for the public
  • stimulating research in the various forms of glycogen storage diseases and have the results communicated to the parents, affected individuals, and the public as soon as possible.

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Rare AffairSun, January 12, 2025 


Contact

info@agsdus.org
1542 Flammang Dr. PMB 1004
Waterloo Iowa 50702

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