Association for Glycogen Storage Disease

Association for
Glycogen Storage Disease

"Spreading our rays to shine for a brighter future"
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Fundraising Projects for the AGSD

The AGSD is active in fundraising and encourages its members to participate in local fundraising projects. Funds that have been raised have gone to support research, provided help in obtaining the pumps for nocturnal nasogastric feeding, assist in providing supplies when needed, and granted awards to help defray college expenses for individuals with the disease. The association has fostered publicity about the condition in local newspapers to the public aware of the condition, the need for research, and the need for support by the individuals with GSD.

2018 AGSD Fun Run/Walk


Each year at the end of our conference, we hold a 1-mile Fun Run/Walk. Kids, parents, and even doctors join us for a short walk to show support and promote awareness of GSD. We pre-sell the t-shirts for a registration fee [and any additional donations].


To make a donation or for further information, please contact Jessica Knepler at jessknepler@att.net or 815-483-1244