Membership in the AGSD
Membership in the AGSD is open to all persons 18 years of age or older, families (including minors), institutions, organizations, etc., that pay or defer the yearly membership dues regardless of location, race, creed, nationality, or other qualifications that could be considered discriminative or restrictive.
In order to receive copies of The Ray, our quarterly newsletter, you must be an active, associate, or deferred member of the AGSD.
All annual AGSD memberships expire on December 31st.
There are two types of membership in the AGSD, Active Membership and Associate Membership.
Active Membership is limited to:
+ persons affected with Glycogen Storage Disease who are at least 18 years old,
+ parents of affected persons, + spouses of affected persons,
+ immediate relatives of Glycogen Storage Disease affected persons (limited to siblings and grandparents),
+ health professionals actively engaged in the treatment of Glycogen Storage Disease-affected persons,
+ scientists actively involved in Glycogen Storage Disease research.
Active members enjoy the rights, privileges, and responsibilities of the Association, including the right to vote and to hold office (provided their dues have been received by the Treasurer of the corporation before March 1st.)
Active members annual dues are currently $20.00 (U.S. funds only).
Associate Membership is available to:
+ all others not included under the definitions of active membership, and
+ any member unable to become an active member before March 1st.
Associate members enjoy the rights and privileges of the Association, excluding the right to vote and to hold office.
Associate members annual dues are currently $15.00 (U.S. funds only)
There are two ways to register for annual membership in the AGSD, by mail or online:
Fees: Active Membership - $20.00 by mail or $22.00 online.
Associate Membership - $15.00 by mail or $17.00 online.
Complete a membership registration form and submit it by mail, along with your dues payment, to the AGSD office.
The AGSD compiles an annual directory of all current active and associate members. The directory is distributed to all AGSD members in the Spring issue of our newsletter, The Ray. These membership lists are to be used for SUPPORT ONLY - whether for emotional (parent - affected) or professional guidance. These lists are NOT for solicitations or requests not approved by the AGSD Board of Directors.