Association for Glycogen Storage Disease

Association for
Glycogen Storage Disease

"Spreading our rays to shine for a brighter future"
Donate

AGSD Governance

The AGSD is governed by a set of Bylaws and a Board of Directors and Officers. The Board is responsible for transacting the business of the corporation, establishing major administrative policies governing the affairs of the corporation, establishing committees and their guidelines, and reviewing the performance of any officer of the corporation. The Board of Directors shall review requests for funds from those seeking assistance and act upon such requests as they best serve the goals of the corporation.

The AGSD Board of Directors consists of five [5] members elected from the AGSD Active Membership, the four AGSD Officers, and the Chairman of the Scientific Advisory Board. Each Director and Officer serves a three-year term. The Board of Directors holds a meeting just prior to the start of the AGSD annual conference, and has at least three conference calls during the year.

The current members of the AGSD Board of Directors are:

Philippe Collat

term ends 12/31/19

Laurie Kinnard

term ends 12/31/17

Jessica Knepler

term ends 12/31/19

Brian Pawlik

term ends 12/31/17

Richie Thelen

term ends 12/31/17

Dr. Priya Kishnani, Co-Chairman of the Scientific Advisory Board

AGSD Officers:

President, Iris Ferrecchia

term ends 12/31/18

Vice-President, Matt Peters

term ends 12/31/18

Treasurer, Hollie Swain

term ends 12/31/18

Secretary, Gwen Glover

term ends 12/31/18

 

The AGSD Officers carry out the day to day operations of the Association. You may contact the AGSD President, Iris Ferrecchia, at president @ agsdus.org. Brian Pawlik is serving as Chairman of the AGSD Board of Directors for 2017.

Hollie Swain is the founder of the AGSD, and currently serves as the Membership Secretary and AGSD Treasurer. She has worked tirelessly to make the AGSD what it is today.

Every year, the Association for Glycogen Storage Disease has its General Meeting for members at the annual conference. Active members are able to comment and vote on proposals brought to this meeting from the Board of Directors and from individuals. The annual election nominations are also presented at this meeting.

AGSD BYLAWS - Part 1
AGSD BYLAWS - Part 2